The UK’s independent authority set up to uphold information rights in the public interest, promoting openness by public bodies and data privacy for individuals.



Headed by Dr Jim Longstaff of Teesside University, this project sought to build, demonstrate and evaluate a prototype Privacy Tool and user interface for potential future use with the Greater Northern Care Records (GNCR). Its wider application linked to the vision of a federated information system covering health and social care, financial, work-seeking and other aspects. It aimed to develop a prototype tool that could provide a means for individuals in the North East to better regulate and share the access of their healthcare records.


The tool can be found in prototype form and a public access web- based version is being prepared. The report, ‘On citizens controlling access to their health and social care data for direct care’  is available on the Teesside website.


If you'd like more information, please contact the ICO's grants programme.